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Human Subjects Research RegulationPerspectives on the Future$
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I. Glenn Cohen and Holly Fernandez Lynch

Print publication date: 2014

Print ISBN-13: 9780262027465

Published to MIT Press Scholarship Online: January 2015

DOI: 10.7551/mitpress/9780262027465.001.0001

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Considering Privacy Protections for Human Research

Considering Privacy Protections for Human Research

Chapter:
(p.251) 16 Considering Privacy Protections for Human Research
Source:
Human Subjects Research Regulation
Author(s):

Suzanne M. Rivera

Publisher:
The MIT Press
DOI:10.7551/mitpress/9780262027465.003.0021

Protecting the rights and welfare of research subjects requires consideration of risks in the context of everyday life. As our attitudes about privacy in everyday life change, this chapter argues that so should the regulations that govern privacy protections in human research. Overly cautious restriction on research uses of data and specimens is unnecessary and would slow the progress of beneficial studies that could improve human health and wellbeing.

Keywords:   Privacy, Research, Attitudes, Regulation

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