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Health InformaticsA Patient-Centered Approach to Diabetes$
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Barbara M. Hayes and William Aspray

Print publication date: 2010

Print ISBN-13: 9780262014328

Published to MIT Press Scholarship Online: August 2013

DOI: 10.7551/mitpress/9780262014328.001.0001

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PRINTED FROM MIT PRESS SCHOLARSHIP ONLINE (www.mitpress.universitypressscholarship.com). (c) Copyright The MIT Press, 2021. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in MITSO for personal use.date: 30 July 2021

Mother, My Medical Record: What Role Do Patients with Chronic Conditions and Parents Play in the Management of Their Medical Information?

Mother, My Medical Record: What Role Do Patients with Chronic Conditions and Parents Play in the Management of Their Medical Information?

Chapter:
(p.271) 9 Mother, My Medical Record: What Role Do Patients with Chronic Conditions and Parents Play in the Management of Their Medical Information?
Source:
Health Informatics
Author(s):

Carsten S. Østerlund

Nienke P. Dosa

Catherine Arnott Smith

Publisher:
The MIT Press
DOI:10.7551/mitpress/9780262014328.003.0010

This chapter evaluates how young adults with chronic disease and their parents interact with their medical records. It analyzes how medical information is stored, who is involved in record keeping, and what information is kept and shared among the different constituencies. It argues that mothers play a central role in the medical record management of adolescents with chronic diseases and explains that parent-maintained home-based records serve as a linking pin in a heterogeneous health care information environment.

Keywords:   young adults, chronic disease, medical records, medical information, record keeping, mothers, home-based records, health care information

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