Mother, My Medical Record: What Role Do Patients with Chronic Conditions and Parents Play in the Management of Their Medical Information?
Mother, My Medical Record: What Role Do Patients with Chronic Conditions and Parents Play in the Management of Their Medical Information?
This chapter evaluates how young adults with chronic disease and their parents interact with their medical records. It analyzes how medical information is stored, who is involved in record keeping, and what information is kept and shared among the different constituencies. It argues that mothers play a central role in the medical record management of adolescents with chronic diseases and explains that parent-maintained home-based records serve as a linking pin in a heterogeneous health care information environment.
Keywords: young adults, chronic disease, medical records, medical information, record keeping, mothers, home-based records, health care information
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