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World Wide ResearchReshaping the Sciences and Humanities$
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William H. Dutton and Paul W. Jeffreys

Print publication date: 2010

Print ISBN-13: 9780262014397

Published to MIT Press Scholarship Online: August 2013

DOI: 10.7551/mitpress/9780262014397.001.0001

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PRINTED FROM MIT PRESS SCHOLARSHIP ONLINE (www.mitpress.universitypressscholarship.com). (c) Copyright The MIT Press, 2022. All Rights Reserved. An individual user may print out a PDF of a single chapter of a monograph in MITSO for personal use.date: 27 June 2022

The Politics of Privacy, Confidentiality, and Ethics : Opening Research Methods

The Politics of Privacy, Confidentiality, and Ethics : Opening Research Methods

Chapter:
(p.223) 8 The Politics of Privacy, Confidentiality, and Ethics : Opening Research Methods
Source:
World Wide Research
Author(s):

William H. Dutton

Tina Piper

Publisher:
The MIT Press
DOI:10.7551/mitpress/9780262014397.003.0026

This chapter explores the politics of privacy, confidentiality, and ethics relating to e-Research, including the main directions in which existing research practices are challenged. It begins with a discussion of traditional research ethics and its related legal and administrative framework before turning to how technical change has forced researchers and policymakers to reconsider research ethics and practices. The chapter then examines the implications of ethical and moral dimensions for data sharing in genomics research, as well as the technical and institutional issues involved in protecting personal data. Finally, it considers the promise of e-Research and proposes novel methods to enhance the administration of research ethics.

Keywords:   politics of privacy, confidentiality, ethics, e-Research, genomics, personal data, data sharing

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