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Reframing RightsBioconstitutionalism in the Genetic Age$
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Sheila Jasanoff

Print publication date: 2011

Print ISBN-13: 9780262015950

Published to MIT Press Scholarship Online: August 2013

DOI: 10.7551/mitpress/9780262015950.001.0001

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Human Population Genomics and the Dilemma of Difference

Human Population Genomics and the Dilemma of Difference

Chapter:
(p.217) 10 Human Population Genomics and the Dilemma of Difference
Source:
Reframing Rights
Author(s):

Jenny Reardon

Publisher:
The MIT Press
DOI:10.7551/mitpress/9780262015950.003.0114

This chapter introduces the theme of bottom-up agency with an account of struggles for authority between socially and scientifically constituted groups of genetic research subjects. It addresses how subsequent human genome variation research projects continue to bypass responsibility for their roles in co-constituting natural and moral orderings of human difference. It considers the assumptions about the constitution and proper ordering of human differences and demonstrates how they hindered consideration of the role that both population genetics and liberal systems of rights play in producing human differences. This chapter shows that the Human Genome Diversity Project and Haplotype Map Project (HapMap) cases suggest that genome scientists and their administrators seek “precise” methods for ordering human differences and defining groups that they believe protect against bias, namely racism.

Keywords:   human genome, human difference, population genetics, liberal systems, Human Genome Diversity Project, Haplotype Map Project, racism

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