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Human Subjects Research RegulationPerspectives on the Future$
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I. Glenn Cohen and Holly Fernandez Lynch

Print publication date: 2014

Print ISBN-13: 9780262027465

Published to MIT Press Scholarship Online: January 2015

DOI: 10.7551/mitpress/9780262027465.001.0001

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Children as Research Partners in Community Pediatrics

Children as Research Partners in Community Pediatrics

Chapter:
(p.79) 5 Children as Research Partners in Community Pediatrics
Source:
Human Subjects Research Regulation
Author(s):

Adam Braddock

Publisher:
The MIT Press
DOI:10.7551/mitpress/9780262027465.003.0008

This chapter provides a framework for thinking about community research partnerships with children. It begins by briefly reviewing the federal regulations governing research with children. It then defines community research partnerships and shows that there are practical, developmental, and moral reasons to encourage research partnerships with children, and that the status of children and adolescents as a “vulnerable population” provides additional support for community research partnerships. The chapter then turns to age considerations, how to define communities in research partnerships, and the form and content of potential research partnerships with children. Finally, it concludes with some recommendations for institutional review boards (IRBs) regarding research partnerships with children; much could be done to promote this important form of research.

Keywords:   Children, CBPR, Research, Community, Partnerships

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