The Data Citizen, the Quantified Self, and Personal Genomics
The Data Citizen, the Quantified Self, and Personal Genomics
The rise of the quantified self and personal social genomics movements pose fundamental questions about the nature of citizenship that go well beyond the confines of reductive concepts of privacy. As we live more and more algorithmically through self-tracking, our identities are necessarily being caught up in the cloud. We maintain that by looking integrally at the “data citizen” we can move beyond reductive concepts of privacy and begin to construct a viable ethics for our brave new world. First, we explore the concept of the data citizen and its policy relevance. Taking the lens of the quantified self and personal genomics, we next discuss five settings in which we can discern the data citizen in action. Finally, we draw up policy recommendations and design principles derived from our notion of the data citizen.
Keywords: Data citizen, environment, privacy, policy, ethics, biosensing
MIT Press Scholarship Online requires a subscription or purchase to access the full text of books within the service. Public users can however freely search the site and view the abstracts and keywords for each book and chapter.
Please, subscribe or login to access full text content.
If you think you should have access to this title, please contact your librarian.
To troubleshoot, please check our FAQs, and if you can't find the answer there, please contact us.