The Data Citizen, the Quantified Self, and Personal Genomics
The Data Citizen, the Quantified Self, and Personal Genomics
The rise of the quantified self and personal social genomics movements pose fundamental questions about the nature of citizenship that go well beyond the confines of reductive concepts of privacy. As we live more and more algorithmically through self-tracking, our identities are necessarily being caught up in the cloud. We maintain that by looking integrally at the “data citizen” we can move beyond reductive concepts of privacy and begin to construct a viable ethics for our brave new world. First, we explore the concept of the data citizen and its policy relevance. Taking the lens of the quantified self and personal genomics, we next discuss five settings in which we can discern the data citizen in action. Finally, we draw up policy recommendations and design principles derived from our notion of the data citizen.
Keywords: Data citizen, environment, privacy, policy, ethics, biosensing
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